An RN & mum of a trans-identified young adult on perils of off-label cross-hormones as first-line treatment for gender dysphoria

Mumtears is a registered nurse, a wife, and mum of two daughters, currently aged 23 and 20 years old. She lives with her husband of 27 years, the father of her two daughters. She says: “Because of my currently unpopular thoughts, and because of not wanting to cause harm to my family, I feel I need to remain anonymous. I also started a blog a while ago, but- frankly- I haven’t kept it up. I am not very technologically sophisticated. If you want to read what there is in my blog, you can find it at myheartandhope.wordpress.com.” She can be found on Twitter @Mumtears1 and is available to interact in the comments section of this post.


by Mumtears

I have been a registered nurse for 30 years. From childhood, I always wanted to be a nurse. I really feel like being in the nursing profession was a “calling” for me.

While going through my post-secondary studies, studying for my Bachelor of Nursing degree, I recall being taught that, in all conditions, medical and nursing treatments should always begin with the least invasive way to treat that condition. I was taught that this was best practice care for the human body.

I have had many years’ experience working in Acute Care Pediatrics at our local children’s hospital. It was there that I learned that children are not simply “little adults”. Pediatric patients require specific attention and care, due to their rapidly developing minds and bodies. Their bodies and minds function very differently from adults. Medications and treatments are all prescribed based on the child’s body weight. They also cross different developmental stages at different rates on their way to becoming adults.

For the past 7 years, I have been working at a very busy family practice, caring for all types of patients with all types of concerns, from birth to the very elderly. I work with a family physician who also specializes in transgender care and sexual health. I have seen, assessed and cared for countless adult transgender patients. They comprise a combination of male-to-transgender and female-to-transgender patients.

Almost 5 years ago, my youngest (then 16) daughter expressed to her dad and me that she “thought she should be a boy”. That was the day our family life changed in ways we never anticipated. Throughout childhood, our daughter never presented as stereotypically “masculine”. She never outwardly expressed to us any kind of discomfort. She appeared to be mostly happy. A bright spark. She loved to play outside: doodle with chalk on sidewalks, sandbox play, climb trees, ride bikes. She smiled often. She loved building with Lego, playing Polly Pockets and with tiny toy horses. She enjoyed making tiny crafts, including models of people and animals made of Sculpey clay.

She was also very academically smart, reading beginner short novels before entering Grade 1. She taught herself how to tie her shoes and how to ride a bike. With the help of her father, when she was about 8 years old, she built one amazing bicycle from two used bikes purchased at a garage sale. In Grade 4 she challenged a Math unit about fractions and passed the final exam with flying colours, even before the unit began. She was musically advanced, playing beautiful piano tunes at age six, wonderful tenor saxophone solos in junior high. We had her tested for giftedness by a school psychologist. He told us that she was “just below” the gifted category.

We parents did begin to notice some general, social discomfort in late junior high, but we assumed that this was normal teen awkwardness, which can happen during puberty, so we were not concerned about it. We were absolutely blindsided by her proclamation that she thought she would be a boy.

My older daughter never had a temper tantrum when she was a toddler. I thought it was down to good parenting. How wrong I was. When our younger daughter was born, she behaved quite differently from her sister. Different personalities, which was not surprising to us because my husband and I are also very different from each other. Our youngest daughter started having temper tantrums at 18 months of age, which lasted 4 long years. Then, it was like a light switch turned on. Suddenly she realized she could settle her emotions down by reading quietly, alone on her bed. After just over 4 years of a frequently chaotic time, our house and family seemed to be at peace again. It was lovely.

Thinking back to this time in early childhood, I thought my daughter’s gender discomfort might be a similar phase for her. I still think it might be. I pray that, with time and life experience, she will develop an acceptance and comfort about her female body, and a knowledge that being the female sex does not have to place limits on her happiness and what she can accomplish in life.

drawing-testosterone-injectionBefore daughter told us she thought she should be a boy, I had already seen and assessed countless adult transgender patients. They comprised a combination of male-to-transgender and female-to-transgender patients who ranged in age from late 20s to early 50s. I admit that I when I first started working in family practice, I was very naïve about what “transgender” means. I noticed that all of the adult transgender patients I met also had comorbid mental health issues, which had not been fully resolved and, in some cases were severe/debilitating. My professional duty was (and still is) to provide excellent, compassionate nursing care to these patients. My personality is compassionate, empathetic and caring. I learned some of the transgender lingo; for example, “top” and “bottom” surgery. I’ve administered countless testosterone injections. I’ve changed the dressing on the donor arm of a young 20-something female-to-transgender patient who had recently undergone phalloplasty surgery. And now, after I administer these injections, I’ve found myself in the staff washroom, trying to compose myself for my next patient. Watching female erasure (in particular) causes me much sadness, partly due to what is going on with my own daughter. But mostly due to the fact that I am an adult female-born woman.

As I already said—but it’s worth saying again–I was taught that, in all conditions, medical and nursing treatments should always begin with the least invasive way to treat that condition. I was also clearly taught that pediatric patients have smaller, ever changing and rapidly developing bodies and minds, and need to be treated differently from adult patients. I was taught that physical, mental, and emotional development in children is ongoing, well into the early to mid 20s. Because of my knowledge about child development, both body and mind, I don’t understand why the medication Lupron is being given to healthy-bodied children. This medication is approved for use to treat adults with advanced prostate cancer and endometriosis. In children it’s used to slow down precocious (early-onset) puberty. It’s only in the past few years that it’s being prescribed for children who have gender dysphoria. This is an off-label use for this drug and it’s being given to healthy-bodied children even though there has been no research done to determine its safety or efficacy regarding gender dysphoria.

And we know that puberty blockers lead in most cases to cross-sex hormones. Why is the current first-line treatment for gender dysphoria in young, healthy bodies off-label, unstudied cross-hormone prescriptions? Young adult females can go into a family doctor’s office, state “I’m transgender”, and be handed a Rx for Androgel. This is what happened with my daughter, over a year ago. She never filled that particular prescription. However, last week she notified her father and me that she plans to start taking testosterone. She’s in a lengthy queue to be seen by our city’s gender specialist/psychiatrist and is impatient. She gave us no concrete reasons for wanting to start taking testosterone. She demonstrates little outward discomfort when she is in our home or when interacting with extended family.

She had one visit with the same family doctor who gave her the previous Androgel Rx. She told us that he told her what side effects could occur (while reading from a computer screen). She told us that he did not discuss reproductive planning with her, and that he gave her no written information about any of the side effects. She told us that he gave her the prescription and some bloodwork requisitions. This family doctor did not take a multidisciplinary team approach; he acted on his own. He did not refer her to an endocrinologist to check her hormone levels. He did not send her to any mental health professional, who could have assessed her for the source of her discomfort and possibly provided her with other less-invasive treatment options, such as cognitive behavioural therapy. How is the way in which this family doctor gave my daughter this off-label cross-hormone prescription medically ethical? In my province, family physicians can be the primary prescriber of cross-hormones. While using a multidisciplinary approach might be a good practice, it is not mandated. I’m currently trying to find answers via our provincial and national medical associations. The answers I’m looking for aren’t forthcoming.

I know that in no other medical or other health-related case would something like this happen, with regard to the prescription of off-label medications. I’d like to give you another home-based, common-sense example: Young adult child says to parent: “I have a really bad headache.” Think about this. Would it make any sense for the parent’s first response to be, “Your dad has some leftover oxycodone from his recent surgery, which he no longer needs to take- here, have some!”? Of course not. What would make medical/practical sense would be to first check that the young adult isn’t dehydrated. It is known that dehydration can cause headaches. “Try drinking some water and see if you feel better”. That would be the least invasive thing to try at first. If drinking water didn’t help the headache and if the young adult child had no know allergies or health conditions, it would be appropriate to next offer them acetaminophen, dosed per the package instructions. It is known that acetaminophen is a very effective analgesic, with a low incidence of side effects. If the headache persisted, perhaps it would be appropriate to then try a non-steroidal anti-inflammatory, such as Advil. There might be some inflammation in the neck or jaw muscles, causing the headache, which, if reduced, could relieve the headache. It is known that Advil is a mostly safe anti-inflammatory medication, with low potential side effects.

Recently I attended a Medical Education Session, which was held at a recent clinic retreat. The session was about low testosterone levels in adult males and testosterone replacement therapy. What I learned is, that for male bodied patients, the recommendation is that if the testosterone bloodwork result is low, it is important to clearly understand the patients’ symptoms concerns and general health. If the patient’s symptoms are low and the patient is not concerned, then giving the patient a prescription for testosterone is not advised. This is because there are also many side effects that can happen from taking testosterone, which can cause negative symptoms/concerns for the patient–especially if these male-bodied patients also have other health concerns. I learned that this is appropriate safe medical care for male-bodied patients.

I’ve done my own learning about testosterone. The pharmacy companies’ printed drug information about testosterone products states that this medication should not be given to women. It has never been studied in female bodies. Also, there are no long-term studies which indicate safety or a positive result for females who take this medication. Physicians are prescribing it “off label”.

I have been trying to learn as much as I can about gender dysphoria and its treatment. I have read many studies, documents, medical association websites, etc., and continue to do so.

When I learned about the newly recognized “rapid onset gender dysphoria”, I realized that much of its description matched what we were/are witnessing in our youngest daughter. Currently there is little known regarding care or treatments for young people presenting with rapid onset gender dysphoria. And few physicians are even aware of this phenomenon. There has been a dramatic increase, over a short period of time, in the number of teens and young adults who are seeking care for being transgender. And the demographic for which sex is declaring transgender has also changed. There are now more natal females than males with this concern.

With all that I have learned about rapid onset gender dysphoria and current treatments for it, I have more questions: Why are these off-label testosterone prescriptions being given to young healthy-bodied female patients as a first-line treatment for gender dysphoria? Especially since it is known that testosterone causes permanent body changes in female bodies, making it an invasive and irreversible treatment. Why are physicians prescribing these off-label cross-hormones without doing further assessments to ensure that this is the best treatment for their patients? I believe these are reasonable questions to ask. I believe these are prudent questions to consider. It is not transphobic to ask these questions. Many parents are asking questions like these. If you’re a parent wanting to learn more and connect with other parents, you can check out: https://gendercriticalresources.com/Support/index.php


Afterword:

I have recently learned that my daughter has likely started her testosterone prescription already. I found the receipt for it in her room at home, for low dose Androgel, from a pharmacy our family never uses, so I know that she has purchased it. She is currently living away for university, in a city which is a 2-hour drive from our home, studying in an arts program there. She has never told any of our close extended family anything about her gender dysphoria. We all live in the same city and see each other fairly frequently. Our older daughter (a graduate with a degree in Cultural Anthropology) knows and supports her sister’s claims, but that is all.

androgelOur younger daughter had the opportunity over Christmas (two Christmas dinners actually), to tell anyone in her extended family about her plan to start testosterone. She hasn’t said anything to any of them. Nothing about her gender dysphoria. I’m sure that it will be upsetting to many of them. My daughter and I text back and forth. We text about her activities (theatre, parkour). About her classes (she studies hard and gets excellent grades). About her saxophone practice (she recently was accepted into the university’s wind orchestra). I am proud of the person she is. I see so much potential for her to become an amazing woman and I am sad that she wishes to erase her female body. Frankly, I believe that “gender” is a crap concept, which is why I don’t discuss this with her. Ever since she first told us her thoughts, we have been clear in telling her our concerns. It’s up to her to think about what we have told her. We hope that she will undergo some work to understand the source of her discomfort, but we know that the decision will be hers to make. She tells us that she loves us. We have clearly told her that we love her and always will. We financially help support her post-secondary education. We want her to have many good job opportunities. We want her to have a good life and be happy and healthy. I dread her voice changing. I dread seeing her beautiful face change. And I find myself wondering if she actually needs to go through all of this, in order for her to “find herself” and come out the other side. The birth name we gave our youngest daughter means “strong”. I thought this would serve her well. We continue to use her birth name because we have not given up hope. As parents, we were never prepared for any of this. And as a registered nurse, I am very disturbed by all of it.

Baptised in Fire: A relieved desister’s story

by Sam

Sam (not her real name), 22, identified as trans between the ages of 16-19. A relieved desister, she enjoys tidying, writing, and watching the weather. She lives in the United Kingdom. Sam is available to interact in the comments section of her article.

Sam joins several other desisters on 4thWaveNow who, along with their parents, have shared their experiences of rapid onset of gender dysphoria (ROGD) in adolescence.


I was not a trans child. I was a gender-conforming little girl, as far as children are ever completely gender-conforming.  I liked pretty clothes but I also jumped in the occasional mud-pit. I didn’t play with Lego very much, because I wasn’t particularly good at it, but who cares? Not I. I felt no discomfort with being a girl. I felt little discomfort with anything, really; I was a bossy, blunt, stubborn little girl with very important opinions about everything.

I was not overjoyed about puberty. I don’t think I’m alone in that! Bras–miserably restrictive. Periods–horrible. Men followed me home from school even when I was twelve and thirteen; I in my uniform was not a very pretty child, but that didn’t seem to be the point. I didn’t like high school because I didn’t understand how I was supposed to act. Being overtly smart, because I was, made people dislike me, so I tried being stupider, but even then, I was still doing it all wrong. I thought I wasn’t on the same wavelength as everyone else, which, of course, is what loads of people feel like. But I didn’t know that. My relationship with my parents wasn’t perfect, but it was good, and we all got on.

When I was in my teens, I got into a disaster of a relationship with a girl. I was no longer in control of myself, of my body, of when I slept and when I ate and where I could be when. Things got very difficult. As the situation became increasingly unhealthy, over a very short space of time I became deeply dysphoric. Suddenly I loathed my female body and its nauseating shapes and its catastrophic frailties with a vehemence I had never known before. I stood in the bathroom and knew I needed to wash but I couldn’t take off my shirt, I couldn’t, because of what was underneath it, so I went out foul. I lost a lot of weight–partly from stress and partly to prove I could still control one aspect of my body. The new flatness of my chest only relieved me, it felt good like nothing else in my life felt good. As my legs got scrawny and the line of my figure straighter I felt only relief. I dressed only in masculine clothing, chopped my hair very short, felt like it made me tough, mean, safe. I still remember the exact moment a man said, “Excuse me, mate” to me as he passed me. It felt so much better than being hit on, even if nothing felt very good anymore.

God, everything hurt. I was desperate, unspeakably desperate to be in control of my own body, in the middle of a situation in which I wasn’t. I wanted to be strong, but I wanted even more to disappear. I wanted everyone in the world to go away. If my body was different, I knew I would have power, to walk away, to STOP IT.

I knew a little about what this was that I was feeling, I’d looked it up online –oh, I’m trans.  I tried to tell my girlfriend that I was trans, that I wasn’t a girl. She carried on as if I had said nothing, wouldn’t humour me by using my new name. I was stung, confused. A friend gave me a binder. I got thinner. I was “he”, or maybe “they”, yes, that was nice, like a cool drink of water; just anyone not called “she”. The “she” I was walking around in felt disgusting to me. “She” was all wrong. Skinny male me, pleasantly mistaken for a boy, felt like a port in the storm, if still not enough. I wanted control, control, of my body, of my life, but not to be me as I had been, because whoever that was far away, getting further away all the time, waiting for all of this to be over. I wanted like hell to be everything I wasn’t, and I didn’t know that other people felt that way too, not just transgender, but apocalyptic, so I was all alone.

The relationship ended. I was in a bad way. I’d made a Tumblr blog, looking, really, for a space that I could have to myself to vent, and I found myself on it a lot more. There is good stuff on that website. But the nasty stuff is so easy to find and so hard to wriggle free of if you’re like I was: lonely, miserable, hollow, and utterly lost, uneasy about everything, because now that she was gone I wasn’t quite so sure about being a boy, but I knew very definitely I couldn’t be a girl. Everything was still all wrong.

It’s difficult to explain what the “nasty stuff” is if you haven’t spent time on there yourself, exactly how pervasive and focused the brainwashing is, how perverse and suffocating and addictive it can be. The convoluted and illogical discourse, the constant shifting of goalposts so you are always on your toes to know what can I say? What am I allowed to think? What does this word mean today? So many lies were told to me about gender, sex, oppression, people, love, health, and happiness. I didn’t get better, and neither did anyone else I spoke to, but we were assured that this way–with our made-up pronouns and our made-up genders and our self-diagnosed illnesses–was the right way. It was a real crabs-in-a-bucket mentality, where any criticism, even of downright abusive behaviour, was transphobic and/or ableist and/or racist. To suggest improving oneself, sorting out your life, was cruelty of the highest order; we were perfect as we were, they  cooed, and anyone saying otherwise hated us and everyone like us. Narcissism ruled supreme.

We copied the writing style everyone else used, and we copied what they said too. They said and then we said we were beautiful. They and then we said we were against the world, the cis world, the hateful world, the world that wasn’t ideologically pure like we were ideologically pure. Nobody suffered like us. We were martyrs, floating high above reproach and deserving, more than anyone, of every good thing in the world: comfort, other people’s money. We deserved to have every rule bent for us, because we were right and they were wrong.

I could go on, describing every argument they used to justify this attitude, but I doubt they’d work on you. A lot of us were young teens, vulnerable in some way, whether abused or ostracised from society or just weak-willed. They gave us a new self, and all the power in the world. We thought so ruthlessly, that people against us didn’t deserve to live, reasoned it out in our mad non-reason –horrible, horrible, icy, inhumanly mechanical thinking that I have never encountered anywhere else since. We didn’t think about what we said, we just repeated what we knew we were supposed to say, and really, truly thought we were expressing our own thoughts.

They told us that we could choose a gender, any gender, out of countless, that we could make up our own and they would be taken seriously; they were, but only ever by others on there. Words on Tumblr ceased to mean the same as in the real world. Words were made up. They said if we wanted to wear make-up, or pink, or feminine clothes, we had to have a label for that, and if we wanted to have short hair, and wear masculine clothes, we had to have a label for that too.

I am not even touching the language around sexual orientation, because that is a whole other article. If we liked to switch how we “presented”, we would have a label to describe that we switched, and we could also change our labels and our pronouns day-to-day to describe how we felt (FELT! That is the crux of all of this nonsense) each day. It is so, so exhausting to be constantly examining every desire, thought, inclination of your shifting, constantly changing adolescent self, trying to find a word to fit, only to question yourself again the next week, or day, or hour. We adjusted our entire sense of self once, again, again, again. Every time, distancing ourselves a bit more from the person we used to be, that we couldn’t bear to be anymore. (I think we knew the old us would be ashamed, so we hid our faces from them.)

The time I wasted! Years on this! The energy! They say “agender” means I don’t have a gender. Do I feel like that? How do I know? How can you “feel” that? They said this was freeing for us, to finally know what to call ourselves, but the boxes they said we had to choose from were so tiny we couldn’t fit, unless we had a hundred, and even then we didn’t feel satisfied. We were forcing ourselves apart into splinters until we weren’t people any more, just words, and words that didn’t mean anything.

Why on earth weren’t we happy? We were children who knew so little about the world, and we believed everything everyone on Tumblr said. They–and then we–all spoke with such perfect arrogance, like we knew everything. We knew we did. There was also an awareness we had–although never, ever voiced, even to ourselves –that if we were just a white, normal, “cis” kid, we couldn’t be part of this club. We were part of it because we were special, and we were special because we were part of the club.

I questioned nothing. I didn’t have one original thought. And I didn’t really feel a thing.

I never looked at myself and thought: girl. That wasn’t right, and what’s more, it was vile. I was something else. I knew it.

Well: my parents knew I was sad. All that I told you about above didn’t fulfil me, although I knew it had to, because I had nothing else. My misery was obvious. One day, I stopped being able to smile. I was so emotionally numb, and that frightened me. I just couldn’t make my face smile. As I spiralled deeper into the trans-cult, my parents & I had arguments over everything. I was snappy, I was mean, I was acting recklessly, I was telling them off for using language that the trans-cult said was bad, I was ignoring all of their eminently sensible and kind advice. I tried to tell them I wasn’t a girl, to use different pronouns when they referred to me.

baptised in fireWhile they weren’t angry, just bemused, and while they really did try, I never felt my parents’ efforts were good enough. It was horribly unfair of me to treat them this way when I myself was always unsure. Even when someone in the real world “validated” me, it didn’t feel as nice as it was supposed to. Why not? I didn’t know. Were they lying? Did they really get it? Why didn’t I feel happy for more than a few minutes, did it mean I was using the wrong words? I crawled back onto my online spaces for further fruitless introspection. Over time, I lost contact with virtually all my old real-life friends – I was no longer invited to anything. I must have been annoying as all hell.

One tiny event in particular– my poor parents, poor me, poor all of us– sticks in my head and makes me feel sick whenever I think of it:

I was in the car. They were driving me to a college lesson because I hadn’t got up in time, because I wasn’t sleeping. I hadn’t washed. Before I got out of the car, my mother gave me a five-pound note.

“It’s the “cheering-up Sam” fund,” she said.

I suppose it sounds silly. But it burns. I’m looking down at that five-pound-note in my hand, and it’s breaking my heart. They knew I was so sad, but what could they do? They loved me so much, but what could they do? What were they supposed to do? How could they possibly help me? I couldn’t hold a civil conversation with them. I was mad, wildly irrational. I knew I was in the wrong but my pride was searing me full of holes. I lost my temper when the conversation became stressful, I walked out of the house and wandered around, alone, sick to my stomach with anger.

I became convinced that T was what I needed. I felt sick at the thought sometimes, but other times I would feel giddily sure, so eventually I summoned up the courage and called a clinic to make an appointment to start testosterone. But before the clinic called me back, something strange happened.

My dysphoria went away. It just went! Why or where it went I can’t say. I was 19 by this time, still clinging to my “trans identity”, insistent I wasn’t “cis”, but the feeling of wrongness about the sex of my body was gone and has stayed gone since. I didn’t love my body in the slightest, but I no longer hated it and think it completely, fundamentally wrong like I had before. I struggled with my weight for a long time then and after, but I began to realise I was female.

My close brush with acquiring testosterone shook me back into my senses somewhat. I was conscious as I came back into my body that I had almost made a huge mistake. The fear of what could have been stayed with me, that as my dysphoria passed I might have been trapped in a body more foreign to me than the original, a body like a boy that my brain no longer actually needed. The irreversible changes that would have occurred weighed on my mind:  the voice no longer mine, the man-face, the dark, thick hair. So anxiously, I thought – that’s not me…

I very slowly, not quite realising it, was distancing myself from the trans-cult and its thinking.

Well, this and that happened, I struggled on, I had a few setbacks, I struggled on a bit more. I got a proper job. This was the kick in the backside, the firework up the arse that I had needed. I was busy. I was tired. I was called “she” – I was too embarrassed to ask for special pronouns. I had to wear work clothes like everyone else. I took my work seriously, but I had to listen to people chatting in such a heretical way! Saying things that I hadn’t dared to even think, for so long! Talking about men being men, and women being women, so casually using language I had forgotten I could use. At some point, I started to agree with them. The hours I worked kept me off Tumblr and Twitter. The real world beamed blinding, hot sunlight into the dark and cold and dusty parts of my world. And one day, I simply deleted all of my social media. I can’t remember why – I just knew I had to. I didn’t stay to say goodbye to anybody I knew, I just wiped it all. I have never missed it since.

My relationship with my parents recovered. It’s a lot better now than it was before, somehow. They know I’m myself– a real, human woman who knows it– again. I started tentatively using the words daughter, woman, girl, sister to describe myself in conversation. Even now when I say those words I feel them in my mouth. I worked, shopped, ate, and I was doing weird things I did before; laughing like a horse, telling off-colour jokes to make my parents snort.

I had spent a lot of time at home, and perhaps the loveliest thing is that I ended up spending much time with my mother, while I was unemployed and recovering. We talked and we argued. But we talked far more than we argued. Sometimes I fell asleep while she was talking; she has a very soothing voice. Sometimes she fell asleep while I was talking – maybe my voice is soothing too. I loved my mother before, but I didn’t know how much I could love her, because I had never tried to understand her. I wonder, if I had breezed through my teens and headed out, unhesitating, into the great beyond, would I talk to her so fondly and treat her so kindly as I do now? Every cloud.

For a long time, I was a shell of myself. But the bossy, blunt, stubborn girl wasn’t all gone. The trauma I went through took time to fade to something I could manage, but I forgave her and I forgave myself. If I met her in the street I really think I could chat with her. I go stretches of days without thinking about it for more than a few seconds. At first my views on, well, everything, flip-flopped wildly. I went to a much wider variety of websites, I read books, I learned about things happening that I had missed, or worse, things where I had believed completely untrue versions of events.

The world had been such a hostile place when everyone was supposedly out to get me, and the only safe space was my Tumblr, where people only ever told me I was right. I learned that people thought a lot of things, had a lot of opinions, and get this: that some people could think one thing I agreed with, as well as another thing I disagreed with. I had been divorced from humanity in the trans-cult, and I was shocked at the empathy I found in myself for people, shocked at all these people, walking around, all with their lives and their feelings and their hearts. The “privileged” people actually suffered; I had believed they couldn’t. There was so much more suffering than I’d known there to be, but there was also so much more goodness. Every morning I realised my horizons were broader than the morning before, only to discover by the evening there was still so much more I hadn’t the faintest clue about.

Turns out, being a woman? You can wear anything you want, and you’re still a woman. You can do what you want, and you’re still a woman. Reality never needs to be validated.

My ability to think critically returned bit by tiny bit. It took time for me to get used to asking questions, checking sources, not believing every little thing I saw or read. I had been taught to believe unquestioningly and I had to wrestle myself out of the habit. Even now, I remind myself I can have opinions and I can disagree with someone, and they can disagree with me, and it doesn’t mean I’m a bad person; it just means that people are people, and I’m a person, and I have to deal with them being people just as they deal with me, because we have a great deal more in common than not. Through it all I have had the support of my parents – we can talk now.

I’m here now. I’ve slowly, quietly rejoined the human race as a woman, knowing it a miracle, holding both the stubborn determination of my childhood and the grateful joy of my young adulthood. The old me I was once so ashamed to face is here, and we are one again, baptised in fire and back fighting.

 

WPATH & The Advocate aim to suppress new research on adolescent gender dysphoria

by Brie J


On February 20, The Advocate, one of the leading LGBT publications in the US, ran an article which attempted to invalidate data collected by physician and researcher Lisa Littman from parents whose children experienced Rapid Onset Gender Dysphoria (ROGD). The author, Brynn Tannehill, immediately posted the article to the WPATH Facebook page.

Tannehill ROGD WPATH post

In the thread,  Tannehill (along with Jo Hirst, author of the Gender Fairy), suggested The Journal of Adolescent Health should be asked to retract and/or apologize for publication of Littman’s preliminary findings. UCSF’s Dan Karasic, MD (moderator of the Facebook page and WPATH official) agreed.

Littman’s abstract had been accepted for poster presentation and the poster was presented at the March 2017 Annual Meeting. (The full paper has not been published yet, and we look forward to its availability).

karasic retract poster

Note: Interestingly, as of this writing, four days after they were written, the last three comments have been deleted from the original thread.

The dismissal of Littman’s work, and the move to suppress it, is unconscionable. For one thing, some young people (like my daughter)  who experienced ROGD have already desisted. Others, who were supported in procuring medical intervention, have already experienced regret. Many more desisters and detransitioners are sure to follow.

This trend has not gone unnoticed by at least some in WPATH. For example, veteran WPATH clinician Rachael St. Claire, in a Facebook post on January 5 of this year, made this comment (notice that commenting was turned off immediately after St.Claire posted):

WPATH jan 5 2018 detrans therapist

This concern is echoed by UCSF clinical psychologist Erica Anderson, herself a transgender woman, in a recent Washington Post article:

“I think a fair number of kids are getting into it because it’s trendy,” said Anderson, who was married for 30 years and fathered two children before transitioning seven years ago.

I’m often the naysayer at our meetings. I’m not sure it’s always really trans. I think in our haste to be supportive, we’re missing that element. Kids are all about being accepted by their peers. It’s trendy for professionals, too.”

In addition, clinics around the world have noted a sharp increase in the number of girls presenting for treatment in the last few years.

increase in girls

A once-rare condition is now increasingly common. It is surely in the interest of all people who care about gender dysphoric youth to investigate the reasons for the increase, and Littman’s work is an early contribution to this effort.

The ostensible reason given for Karasic et al’s desire to have Littman’s abstract retracted is that the data comes from a self-selected group of parents, culled from websites where such parents gather, in an anonymous survey format, and is thus deemed to be worthless. Yet advocates for pediatric transition constantly promote other survey studies, also culled from “self selected” groups (such as the Williams Institute suicidality survey), as well as research conducted by investigators who only recruit subjects from pro-early transition organizations (such as Kristina Olson’s two studies), with no attempt to broaden their samples to children who are not socially or medically transitioned.

In fact, Littman’s work is the first to study this new presentation of gender dysphoria, and she collected information from the people who know these children and teens better than any transgender advocate, endocrinologist, psychologist, or therapist ever could — their parents.

But you’re not listening to us.

Littman’s study, according to its critics, is contentious for a few reasons, but most notably for using the term “Rapid Onset Gender Dysphoria” as a descriptor for a new kind of trans-identifying youth, primarily natal females, who during or after puberty, begin to feel intense unhappiness about their sexed bodies and what it means to feel/be/present as a woman.

Let me emphasize: What is “rapid onset” in this population is the dysphoria, not the gender atypicality. What distinguishes these young people from the early-onset populations studied previously is that they may have been happily gender nonconforming throughout childhood (though some were more gender typical), but they were not unhappy (which is all “dysphoric” really means), nor did they claim or wish to be the opposite sex. The unhappiness set in suddenly, in nearly every case only after heavy peer influence, either on- or offline.

This phenomenon has only recently been noted by clinicians directly involved in treating gender dysphoric youth, as well as other mental health professionals. While there is no lack of evidence for adolescent emotional and behavioral social “contagions,” Littman’s research is the first to collect data on this phenomenon as it relates to identifying as transgender.

Even though rapid onset gender dysphoria has been noted by other researchers and clinicians who work with these populations, The Advocate and WPATH’s Dan Karasic consider the descriptor “junk science.” In a swift attempt at censorship, Karasic deleted all but one of my comments on the public WPATH Facebook page and then banned me from the group when I asked him to please consider the experiences of young people, like my daughter, for whom gender dysphoria set in hard and fast after being exposed to the idea that her gender nonconformity was in fact a sign of being transgender.

Interestingly, after I was purged, Karasic posted links to both my and my daughter’s stories on 4thWaveNow, and unfounded accusations were leveled against me and 4thWaveNow; since I was banned, I was not able to respond to them.

Interested readers may refer to these Twitter threads should you want more blow-by-blow details:

https://twitter.com/BJontry/status/966728843649204224

https://twitter.com/BJontry/status/966479677098401792

It is concerning, given Karasic’s reaction to Littman’s research, that he and others evidently leave no room for a teenager to be incorrect about how they are interpreting their feelings, no room for a clinician to be incorrect when recommending transition, and no room for a parent to understand what is going on with their own child. It is narrow minded and short-sighted, especially considering there is no long-term data supporting the benefits of early medical transition for gender dysphoria or consensus from the medical community about best treatment methods.

This lack of consensus, while well known and acknowledged by the international medical community, has been ignored by many transgender advocates, along with the “gender affirmative” recipients of a $5.7 million NIH grant, who, with the help of the mainstream media, have manipulated the public into believing early social transition, pubertal blockade, and early cross-hormone treatment constitute settled science.

To be clear, in “Early Medical Treatment of Children and Adolescents With Gender Dysphoria: An Empirical Ethical Study,” a 17-clinic international study published in The Journal of Adolescent Health, the authors explain that:

As still little is known about the etiology of GD and long-term treatment consequences in children and adolescents, there is great need for more systematic interdisciplinary and (world- wide) multicenter research and debate. As long as there are only limited long-term data in support of the guidelines, there will be no true consensus on treatment. To advance the ethical debate, we need to continue to discuss the diverse themes based on research data as an addition to merely opinions. Otherwise ideas, assumptions, and theories on GD treatment will diverge even more, which will lead to (even more) inconsistencies between the approaches recommended by health care professionals across different countries. (372)

I am sure some WPATH members, like the treatment teams in Lieke et al., “feel pressure from parents and adolescents to start with treatment at earlier ages.” I know there are others, besides those reported in Lieke et al. who:

[…] wondered in what way the increasing media attention affects the way gender-variant behavior is perceived by the child or adolescent with GD and by the society he or she lives in. They speculated that television shows and information on the Internet may have a negative effect and, for example, lead to medicalization of gender-variant behavior.

“They [adolescents] are living in their rooms, on the Internet during night-time, and thinking about this [gender dysphoria]. Then they come to the clinic and they are convinced that this [gender dysphoria] explains all their problems and now they have to be made a boy. I think these kinds of adolescents also take the idea from the media. But of course you cannot prevent this in the current area of free information spreading.” –Psychiatrist

It is unconscionable that transgender advocates, and the leading international body concerned with transgender medicine, would seek to quash data that address unsettled and mostly unexplored areas of concern. It is incredibly important that ROGD be included as a research point because the main studies used to justify the use of puberty blockers, cross-sex hormones and surgery in adolescents required “persistent gender dysphoria since childhood” and “no serious comorbid psychiatric disorders that may interfere with the diagnostic assessment” before the patients were eligible for medical intervention. In other words, none of the participants in these treatment studies had adolescent-onset of their gender dysphoria and none of the participants had serious psychiatric issues.

It is a huge leap to assume that an entirely different population of adolescents with a different presentation of symptoms will have the same results as the adolescents in the Amsterdam cohort.  An additional gap in the research is that because all the desistence and persistence studies are about adolescents who had childhood onset of gender dysphoria, the persistence and desistence rates for adolescent-onset gender dysphoria are unknown.

In all areas of medicine, best practices come from intense discussion and research into indications and contraindications, and into risks, benefits, and alternatives. Yet, WPATH’s Karasic, along with the trans advocates who have prominent roles in the organization, appear to believe it is in their community’s best interest to shut down all discussion about contraindications, risks and alternatives. This is inappropriate and undermines the very concept of informed consent.

Furthermore, The Advocate article suggests that Littman’s sample is biased because it gathered data from “unsupportive” parents. This framing is both fallacious and dangerous to gender nonconforming and dysphoric youth. It suggests that the only path for gender dysphoric youth, even those with a rapid onset, is full affirmation including fulfillment of requested medical interventions. It also implies that parents aren’t able to be both supportive and cautious.

I have spoken to some of the parents who participated in the study. Few could be described as “unsupportive.” In fact, almost overwhelmingly, these parents supported their children in thinking about their gender identity and helped facilitate their preferences for atypical gender presentation and interests (taking them for haircuts, new clothing, and so forth). Many sought professional mental health consultations and treatment for their children. But what many of these parents did not support for their underage teenagers were hormonal and surgical interventions. This is an important distinction: Littman’s sample were supportive parents who were unsupportive of a particular medical treatment option.

It is entirely possible to be supportive parents invested in our child’s well-being and not agree to unproven medical procedures for which there is no consensus from the medical community of long-term safety or benefit to the majority of dysphoric youth. However, the loudest voices in pediatric transgender medicine often cite Kristina Olson’s descriptive research about early social transition for children which relies on the methods that they decry as “junk” when used in Littman’s research (targeted recruitment and the collection of data from parents). Kristina Olson recruited her sample from support groups and conferences to find parents who have socially transitioned their children, which might consist only of parents who are supportive of early social and medical transition. So is it an acceptable method for both studies, junk for both studies, or are the WPATH activists simply going by whether they like or dislike the findings?

As all parents know, we can tell when our children are suffering. To remain credible, advocates for gender dysphoric youth and the international organization which claims to be concerned with generating best practices in the field of transgender medicine must acknowledge that ROGD exists and there are some trans-identifying youth who arrive at their identity from external social pressures, and at times, internalized homophobia.

Related to this last point, the WPATH Facebook page wasn’t the only place my respectful questions were deleted. In a comment on The Advocate article itself, I asked Tannehill and Advocate readers to consider the recent research into how homophobic name-calling influences (hint: greatly) children’s perceptions of their gender identity.

brie advocate comment

My comment was swiftly scrubbed from existence. For those interested in reading “The Influence of Peers During Adolescence: Does Homophobic Name Calling by Peers Change Gender Identity?” the full text is here.

Finally, the fact that ROGD is being discussed by the conservative media is not, no matter how many “incriminating” links Tannehill dropped in the Advocate piece, a legitimate reason to discredit the data. The irony is not lost on many 4thWaveNow parents that our stories are covered by media outlets we typically avoid. In this politically charged climate, it is important for researchers, clinicians, and parents to work together to “first do no harm” even when those we otherwise disagree with call for the same cautions.

Clearly, Brynn Tannehill and Dan Karasic do not speak for all members of WPATH. I know for certain that they do not speak for many professionals currently working with gender dysphoric youth who see in their own practices what can only be described as “rapid onset gender dysphoria” in an increasing number of adolescents, particularly girls. Clinicians are aware of the rapidly growing numbers of young people requesting services and the possibility of social contagion; there are those among you who are concerned by the potential for misdiagnosis and the subsequent harm that will come to some of your patients as a result.

It is time for those with concerns to speak out. Please do not allow your ethical and professional concerns to be held hostage by ideology.

The Tide Pod Challenge: How a teenage self-harm fad ought to be handled

by Overwhelmed

If you haven’t heard, the Tide Pod Challenge is all the rage with teens and young adults. Unfortunately, many of them have bitten into, ingested, and accidentally inhaled the liquid laundry detergent packets, leading to serious medical consequences. Several young people have even died.

Tide bottleWhy has the challenge become so popular? Well, this age group is not known for risk aversion or for considering the consequences of their actions. And many of them have a social media presence and strive to accrue “likes” and gain new followers. So when #TidePodChallenge started trending, some of them just couldn’t resist. They recorded themselves biting into laundry pods and uploaded it to various social media platforms. This in turn inspired more to join in the dare.

I’m sure 4thWaveNow readers can appreciate the parallels between the Tide Pod Challenge and Rapid Onset Gender Dysphoria.  The same age group is involved. Both are spread by social contagion, which is greatly amplified by social media. And both cause medical harms.

Dr. Susan Bradley, longtime expert in childhood gender dysphoria, as well as autism, had this to say about Rapid Onset Gender Dysphoria (ROGD) in a recent article in the Canadian journal Post-Millennial:

In my own practice, I have seen a good many young women displaying the phenomenon known as “rapid onset gender dysphoria,” or ROGD, which overwhelmingly affects girls.

Typically, the ROGD teenage girls I see have, wittingly or not, begun to experience homoerotic feelings about which they are conflicted. They tend to be socially isolated, and somewhere “on the spectrum.” They may have histories of eating or self-harm disorders.

They have found companions with the same attributes on Internet sites, which diminishes such adolescents’ sadness over their social isolation, but which can also lead to foreclosure of reflective thinking about their own feelings and situation. Some of these girls are depressed, afflicted with suicidal ideation. Because of the initial euphoria they experience in finally “belonging” to a well-defined kinship group, they tend to embrace the idea of transitioning wholeheartedly as the solution to their other problems.

I’ve been impressed with the actions being taken to stem the Tide Pod Challenge (which I list below). It gives me hope that when the serious ramifications of Rapid Onset Gender Dysphoria are eventually acknowledged, steps will be taken to curb it as well.

So, how have responsible adults acted to reduce the number of young people being harmed by the Tide Pod Challenge?

  1. Many journalists are reporting about it. The public is being informed of this trend, including the serious medical implications—seizures, chemical burns to the eyes which can cause temporary blindness, fluid in the lungs, respiratory arrest, coma, death.
  1. YouTube (owned by Google) has removed videos that show people taking bites of laundry detergent packets. According to a spokesperson: “YouTube’s Community Guidelines prohibit content that’s intended to encourage dangerous activities that have an inherent risk of physical harm. We work to quickly remove flagged videos that violate our policies.”
  1. Facebook has followed suit, deleting content off its platforms (including Instagram), stating “we don’t allow the promotion of self-injury and will remove it when we’re made aware of it.”
  1. Procter and Gamble, which owns Tide, is trying to turn the tide (sorry, I couldn’t resist) of this social contagion. According to a company representative, “We are deeply concerned about conversations related to intentional and improper use of liquid laundry pacs and have been working with leading social media networks to remove harmful content that is not consistent with their policies.” Tide has even enlisted a celebrity, NFL star Rob Gronkowski, to appear in a Twitter video informing people that Tide Pods are for washing, not eating. It has already garnered millions of views.

tide podsThis is exactly how a socially contagious craze that is impacting young people SHOULD be handled. I dream of more journalists honestly covering Rapid Onset Gender Dysphoria and its associated often-irreversible medical consequences. I wish pharmaceutical companies would speak up and condemn the inappropriate, non-FDA approved, off-label use of their products. I hope social media platforms will restrict content that glorifies tweens, teens, and young adults altering their bodies via binding, cross-sex hormones, double mastectomies, and genital surgeries. It could easily be interpreted that cheering on medical transition already qualifies as a violation of YouTube’s policy of encouraging “dangerous activities that have an inherent risk of physical harm” and Facebook’s “promotion of self-injury.”

But unfortunately, the transgender rights movement is overshadowing this epidemic. I think the majority of the public is totally unaware that kids are being influenced, especially by social media, to believe that they are transgender. They become convinced their bodies are wrong and in need of drastic life-long medical interventions. The adults who are aware of this contagion are often afraid to raise concerns because they will be labeled transphobic (and potentially lose their jobs). Of course, this seriously dampens the opportunity for rational discussion on this topic. Mainstream journalists, particularly in the United States, have been extremely hesitant to cover it.

I have no doubt that Rapid Onset Gender Dysphoria will eventually become widely known as a disastrous medical fad. Steps will be taken to curtail the damages. It’s just a question of when. In the meantime, parents of ROGD kids and their allies will keep speaking out. They’re doing what they can to reduce the number of young people who may eventually regret how easy it was to medically transition.

Unlike the Tide Pod Challenge, the spread of Rapid Onset Gender Dysphoria has gone unchecked for several years now. Thousands of young people and their families have been impacted. It has gotten so out of control that serious efforts need to be undertaken to counteract the nearly insurmountable amounts of misinformation, and help control this social contagion. This effort needs to be more than parents speaking out. Medical organizations need to review the science (not rely on trans activist ideology), reevaluate their stance on pediatric medical transition, and rein in rogue practitioners. If we have any chance at stemming this, it will have to be done on a grand scale from multiple fronts.